June 22, 2014

I'm Still Around

It seems like forever since I have been here, but it's only been 3 months.

Let's see what's been happening: Had emergency ileostomy surgery in Feb.  Unexpected surgery in May and now more health problems - I think I need to change my blog from PH awareness to just plain old health issues - that would cover everything.

So my emergency surgery was in Feb.  All went well for about 6 weeks, then I started to prolapse again daily.  I had to keep pushing it back in to avoid more surgery.  I just couldn't keep doing that so my surgeon learned about a new technique where they take the intestines and form "S" shaped patterns and sew them together. 

On May 14 I had the new procedure done and everything was going fine until I got some horrible pains in my lower abdomen, saw my surgeon, she ordered a double Ct-scan and said to see her the next day.  My surgeon called the same day immediately following the Ct-scan cuz the radiologist was alarmed by what he saw.

To everyone's surprise they found 3 things wrong not relating to my original pain.
     1.  I now have double partial collapsed lungs instead of one.
     2.  I have a significant amount of air trapped in my stomach causing it to expand.
     3.  I now have a compression fracture of my L4

Apparently it is not a good thing to have an air filled stomach for any length of time - mine according to past tests has been noted for 5 months.  I had an X-ray 1 week after the Ct-scan to see if the air has moved - it did not - so on Monday the 24th I will be having a EGD or scope of the stomach to see what is causing this problem.

Had my EGD and results are that I have Gastroparesis to better understand this condition please click on gastroparesis

There isn't anything they can do for my lungs because of my Bronchiectasis except see the pulmonary specialist in Sept.  It just makes it harder to breathe as the space is more compromised.

As for my L4 - can't get into the Neurosurgeon until July 8th so I will wait until then.  I will try to update after I know more. 


Colleen said...

I haven't been around the blog world much lately, but I do think of you often. I thought I'd come by tonight to see if you had posted. I'm sorry you continue to deal with so many health issues. I'm sure it must be so tiring both mentally and physically. I will continue to pray for you!! <3

Anonymous said...

Hi there, I'm Lindsey! I have a question and would love to speak with you about your medical journey. Could you please email me when you have a chance? Thanks so much, I really appreciate it. Looking forward to hearing from you :)