April 21, 2012


I just received the confirmation I was looking for about Mayo Clinic in MN. My transportation company who drives me around when my friend can not said that they have a contract with WI and neighboring states that if we do not have a ride to Medical Appts. they have to take us. I do not need a prior authorization or anything just a date and I call them up 3 days before and I am guaranteed a ride. I am so excited.

If that wasn't enough good news - I found out both my insurances are excepted - and since I do not have extra money or should I say with my financial situation I qualify to live near by at no cost to me. I also qualify for food vouchers. God is good All the Time. Oh and I do not need a referral I just make the appt. and away I go.

I have requested the Appts., forwarded the pertinent info to them via the Internet now I have to wait 2 business days for the review, then they call me go over some more medical stuff and then I get the Appt. dates.

I my PCP approved this, well she personally called me yesterday and was doing the happy dance on the phone I could almost see it. She said she will do ALL the gathering of all the necessary documents and test results we need and make an Appt. to see me and hand deliver them to me.

Dr K. is the best Dr. I have ever had and goes the second mile to help her patients when she knows she can't. She can't wait for the process to go forward. Truthfully I think she was more ecstatic then I was.         
Thanks again I will keep you posted as I know more. Deb.

April 18, 2012

Three Different Appointment Results

Hello and welcome to my Mystery Medical Story.

It has been a battle for a long time and right now I am not any closer to getting answers than I was in 2007 when this all began.

The first appt. was on April 12th with the Pulmonary Doctor who specializes in PH. He took a look at me, my test results, my blood pressure and said "well I see your blood pressure is starting to climb but it is not bad."

His visit was somewhat frustrating because he has no clue what to do with me and said so, he told me to just go home and live with what I have and not get frustrated because that will not help. I am to keep taking my water pills because at least that is working and keeping me from more serious problems. I said that is fine but what is it I have that I need to just live with?

He begins to name them one after another and then said I would benefit from seeing another doctor who and what kind shocked me and my friend. He looked at my fingers and nails and wanted to know if I noticed a difference in them, which I replied yes. He wants me to go see a dermatologist for "clubbed fingers and nails". The thing is, clubbed fingers are most likely caused by a heart problem, a lung problem and or low oxygen in the blood. All of which I have. And the Pulmonary Doctor who deals with the lungs wants me to see a Dermatologist. Now isn't that a good one.
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The Endo appt. on the 16th went horribly wrong. This Dr believing he knows it all, cursed me out and told me when, where and how to take my Thyroid medicine. I have been taking thyroid meds since I was 15 yrs old. I do not believe they changed the way one is to take them. Since I refused and told him why, I couldn't take the thyroid medicine his way, he told me in a rage he has been treating people for 25 yrs and he knows better than the pharmacy and my PCP. And that I do not need to be tested again for a year. Which no one is agreeing too because I do not have a thyroid it flip flops from hyper to hypo on a regular basis, that is why I was sent to see this yahoo in the first place. I will not be going back to him in the near future or ever.
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I saw my foot doctor today for my edema and Tenosynovitis of flexor hallucis longus. His recommendation is to rest and ice my ankle and stay off it while I am on Prednisone for a week. He does not want me to even go to the Pulm. Rehab as exercise can cause more damage. He thinks that is what is still causing the Tendon flare ups in my knees "the exercise". The Ortho Dr never told me to rest and ice and certainly never said to stop exercising.

I will go back to the foot doctor on the 30th if I am not better or the pain has not gone away I will need to be put in a air boot again for 6 weeks. He thinks the flare ups are due to an arch problem in that foot because of the Tarsal Tunnel Surgeries in 1993. My foot is not stable. He wants to talk about getting arch supports but my insurance doesn't cover it and I can not afford it. I am not worried about this for I know the Lord will provide as He Has always done before.

April 10, 2012

Ortho Appointment

My ortho appointment didn't go as planned. My Dr. said he doesn't work with feet or ankles I need to see another Dr.

He did address my right knee pain and found out that the Patellar Tendon was severely inflamed. Then he looked at my left knee and found that to be severely inflamed but with a bursa within the area below the knee along the Patella Tendon.

Course of action was a Cortisone injection in both knees. I am to watch and wait to see if the Tendons calm down. I did ask him why are all my Tendons going haywire and he had no response. He said it wasn't his job to figure that out but to calm the pain down. Another mystery I guess.

I went to Pulmonary Rehab today but had to cautiously use the NuStep and not bend my knees too far. Walking today has been some what painful. I see my Podiatrist on the 18th to address my foot have no clue what is in store.

April 04, 2012

My Medical Mystery

Awhile ago I said I'd post as soon as I know something so here goes.

My current medical diagnosis (confirmed):

CHF - Congestive Heart Failure, unspecified
LVDD- Left Ventricle Diastolic Dysfunction
Essential hypertension, benign
Tricuspid Regurgitation - mild
Edema - severe
Autonomic dysfunction
Neurogenic Bladder -NOS
Lupus anticoagulant w/hemorrhagic disorder
Nonalcoholic steatohepatitis - NASH
Iron deficient Anemia
Vit D deficiency
Abnormal EKG's - prominent R(V1) and left axis - nonspecific - as seen in patients with pulmonary disease
-nonspecific T-abnormality.

Dry cough on a daily basis, still 8/10 lb weight gain daily - makes Shortness Of Breath worse until I take the water pills.

Been though the wringer again with blood tests and other tests - Right leg will not stop swelling even with water pills will be having MRI on ankle and knee next week.

No improvement at all in Pulmonary Rehab They are sending me to my new PH Dr on April 12th, 3 Drs have told me another RHC needs to be ordered. My blood pressure has been climbing from my normal of 90/50 to now 118/78 to 120/85.
Just received my MRI results from my foot - I have what they called a raging tendonitis have to take Celebrex for only 14 days to see if it works if not then go to see the Ortho doc.

Due to the fact that my thyroid is hyper again I will be seeing my Endocrine Dr on the 16th of April. My Dr. is concerned because when someone doesn't have a thyroid and on synthyroid my levels should not be changing.