December 23, 2008
December 19, 2008
December 15, 2008
Jeremiah 29:11 For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.
As the above scriptures state we are to Seek God first - not worry about tomorrow - and He knows the plans He has for me. (My Paraphrase)This is where I live, in these apartments. Been here 4yrs, I love being here it is like - I'm a princess in a castle. It is as gorgeous in the inside as it is outside. I would love to remain living here. When I moved here the Lord showed me a picture of the building the very one you see here. I went for my tour - and signed the papers the next day. I moved in 2 weeks later.
Today I lay in His hands the proposed rent increase. I am asking for God's direction for this matter. Myself and 7 others were given notice today that as of the end of our leases (mine is Aug. 31, 2009) we will have to give notice to move by July 1, or pay an additional 180.00 a month increase in rent. Since all 8 of us receive help through low income housing I'm asking for prayers that the housing dept. be accepting of the increase and allow us to stay without costing us the entire 180.00 a month. If we have to pay the full increase plus our current rent all 8 of us will most likely have to move. We were presented with other options so that is why the need for prayer - Will you please help me pray for God's direction in my life? Thank you very much for praying with me. I will update on this matter as soon as I know more.
I can't worry about where I am to live or how will I pay for it - the Lord provides for us. All we are to do is bring it to Jesus and lay it at His feet. And that is what I am doing.Thank you, Deb
December 14, 2008
December 09, 2008
A Little Update on me:
December 04, 2008
December 03, 2008
To view Nikolas's mom's blog - press the label with his name in it. When the site opens it will be in Norwegian - go to http://translate.google.com and have it translated into the language you can understand.
His new pictures tells a thousand words in all languages.
December 02, 2008
When things go wrong, as they sometimes will. When the road you're trudging seems all uphill. When the funds are low and the debts are high. And you want to smile, but you have to sigh. When care is pressing you down a bit. Rest if you must - but don't you quit.
Success is failure turned inside out. The silver tint of the clouds of doubt. and you never can tell how close you are. It may be near when it seems afar. So, stick to the fight when you're hardest hit. It's when things go wrong that you mustn't quit. Author unknown
As I'm trying right this to you all, stop and take a pause, look out there what to you see? I saw the days past when my 2 children were smaller, they knew something was right, just stopped and smile and said mom so it doesn't look right but look you kept going no matter - you didn't quit. We are to keep going no matter what - for the prize is before us. Don't quit - keep going.
November 29, 2008
My Grace is Sufficient ~ 2 Corinthians 12:9-10 ~ But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.
Many of you who read my blog are probably been wondering why I haven't written lately! Let me share why....
1)the new medication I am taking has been making me very dizzy and sick, more than I already am - I am having trouble concentrating. It seems just moving my eyes makes things worse.
2)the nerves in my hands are getting worse so typing has been just a tad difficult. Thank you for spell checker. I can't feel my fingers on the keyboard - I have many pinched nerves in my neck causes this - so with God's help I will keep getting my blog out - just not everyday.
Over the last couple days as I was praying for others I realized how much I rely on the Word of God to get me through from one day to the next. I can't get through a day without His help, guidance, comfort and strength. Have you realized where your strength to go on, comes from?
The God of All Comfort ~ 2 Corinthians 1:3-7 ~ Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God. For just as the sufferings of Christ flow over into our lives, so also through Christ our comfort overflows. If we are distressed, it is for your comfort and salvation; if we are comforted, it is for your comfort, which produces in you patient endurance of the same sufferings we suffer. And our hope for you is firm, because we know that just as you share in our sufferings, so also you share in our comfort.
May the Lord touch each and everyone of you that reads my blog with comfort and strength, send Blessings to them all, Amen.
November 26, 2008
Thanksgiving is a time of year that most people get together to have a special meal and say a prayer for the food and go around the room saying one thing they are thankful for. But for me being a Christian, thanksgiving should be everyday. A prayer given to the Lord saying how thankful we are for all that we have not just asking for things.
November 25, 2008
November 23, 2008
Because of your prayers for a few of the many who have PH, they are being touched by God, and that is something to be thankful for.
November 21, 2008
“I always thank God for you because of his grace given you in Christ Jesus. For in him you have been enriched in every way – in all your speaking and in all your knowledge.” 1Corinthians 1:4-5.
When I started my home business in 1994 I based it on the above scripture, also I used the Rose as my symbol for my business (floral designing & landscaping). The Rose has a special meaning to me - it represents the God Head Three in One.
The Rose is the only perfect flower made, I believe, the bud so perfectly formed to me symbolizes God - protecting His Son within, the open flower in full bloom is so awesome, breath taking in so many ways - symbolizes Jesus - perfect without sin, the stem with it's throne's symbolizes our sins, trials and tribulations we have to endure. A garden full of Roses always makes me feel like I am in heaven, it is so captivating.
I met a girl down in Chicago in 1994, through a support group for RSD (Reflex Sympathetic Dystrophy) a nerve disorder that causes extreme pain 24/7, that many have but don't know they do until diagnosed. Anyway Kim and I got along like sisters, every time she needed surgery I would go there by train or bus to be with her...she always did the same for me. Strangely her favorite flower was the Yellow Rose. I went to Chicago once a month to the support group, every two weeks for treatments for my RSD. I always would go to lunch or something with Kim when I was in town, for 2 years.
One day in 1996 she called me up and asked if I would be her bride's maid - and could I do your flowers for her wedding, she added all I want is yellow roses. I was so delighted I said yes. There was only one problem she said - due to the RSD my frozen shoulder, how can I carry the flowers? She made an appt. with her treating dr. who said to go see her surgeon.
Kim's surgeon said all she needed was one more surgery on the shoulder and she would be fine. The surgery was scheduled for Sept. 1996, she moved her wedding up to Nov. from April. Her dr. told her she would be ready. Mark was so thrilled as was Kim.
The day of her surgery I could not be there, first time I missed being there, but I had an ortho appt. at the same time in Milw. she was in Chicago. As I was going up in the elevator to my appt. I felt something was wrong with Kim. A small voice said, "I called her home". I looked around to see if anyone else was there talking, but I was alone. God had prepared me ahead of time. I yelled oh no please don't tell me she died! I kept thinking maybe if I had gone there instead of my appt. this wouldn't have happened, but it did.
I got home and in my mail was a card from Kim, also a message from Mark to call him. My heart sank.... the card Kim sent me was the exact same one I sent her two days prior, I thought, this can't be mine. It was not, "My Yellow Rose of Peace" which she wrote....Remember....Someone always cares. Love Your Friend From Afar, Kim. One can't even imagine what I was thinking, I knew before calling Mark, the Lord called Kim home. A peace came over me before I even picked up the phone to call, Mark said thank you for the card you sent Kim, we rec'd it today and I will put it with her in the casket. It was the same one I rec'd from Kim. He said that he is at peace with Kim's passing.
With my leg in a brace, I asked a friend to drive me to the funeral in Chicago - and I layed a dozen yellow roses beside her. Mark and I never met, but when I came in the room with the yellow roses we hugged and cried - we knew who each other was. God brings people in our paths for a reason - sometimes we will never know why. Kim needed a friend who understood what she was going through - RSD. I was the one.
The same with PH, there are so many I have met via the Internet - that I believe God is allowing me to go through PH to be there for others, as He allowed me to be friends with Kim. But a cure needs to be found, there are too many deaths because of PH. So my prayers will continue.
MY YELLOW ROSE OF PEACE
When I give to you a yellow rose
I wish you the peace
That only heaven knows
As you look upon its beauty
And feel the love
Know that our friendship
Is blessed from above
Accept my yellow rose
With love and peace
I pray that your joy in the Lord
Will never cease
When, He comes to take you
From this land
May He walk with you in eternity
Hand in hand
by: Esther Lorenz
November 20, 2008
November 18, 2008
When pressures remain too high for too long, the RV becomes so stretched out that it cannot contract effectively. This is called congestive right-heart failure or cor pulmonale. ("Failure" does not mean that the heart has stopped, it means that it can't pump our all the blood in it into the lungs.) When your RV fails, there is a backup of pressure into veins throughout your body, and you swell with fluid, especially in your legs, liver, abdomen, and the spaces in your chest surrounding your lungs. In PAH, your right atrium also tends to get bigger, because of back pressure from the RV.
There is good news: when the pressures in your lungs lessen (because of medications or a transplantation of a new lung or both lungs), your heart tends to return back to its normal size. Perhaps after treatment, you may no longer have congestive heart failure. But if your heart has been stressed so long that scar tissue has formed in its structure, it is still damaged.
There is so much information on PH that one person alone can not tell it all please visit our site at http://www.phassociation.org/ and learn as much as you can, you can also visit some of the my friends' site under "My Unique Phriends", (right hand side of the page) they to share alot of on PH as well. there are so many people are suffering with this disease you wouldn't imagine. From infants to adults. Please pray many are in need of a cure or touch from God.
My Personal note:
I have PH caused by the blood clots that went from my heart to my lungs. I make blood clots due to lupus anticoagulant (an autoimmune deficiency) I have, so for now my treatment is to take blood thinners called Warfarin daily to prevent more clots in my lungs. I also have to take water pills (lasix) to help with fluid build up. I am not on medications to treat PH because they still have to rule out if I have a heart problem or just a lung problem or both. PH is VERY hard to diagnose, I first learned about PH in March 08' when I was told I had it.
The Drs. have to keep testing me so that they can figure out what which medications are right for me. Not every medicine out there for PH is for every one - certain medicine are for certain things. But once they diagnosed you with PH, you need to find a PH specialist who deals with PH. At our web site you can find a specialist in your area by going to the section that says "Find a Doctor". Both my heart dr. and PH dr. are working hand in hand to get the proper treatment for me.
November 16, 2008
Lastest Update on Mason - As Reported from Colleen
First of all, since I'm tired of saying Mason's mom, I will call her by her first name. Janet called me a bit ago to say that there was no major change with Mason since yesterday. His o2 sats had dropped a bit at one point, so they had to increase the o2. Mason is still opening his eyes a bit, he also sticks out his tongue, and he's moving his arms. Janet has had to lay on Mason's arms because she just knows he'll rip out the ventilator tube if he gets a hold of it. I think that is the biggest reason why he is still sedated!!
Mason's doctors have said that Mason had internal bleeding in his lungs, which is now stopped. The only conclusion they have come up with as to why this happened is that Mason had a very bad reaction to the photo treatment on Monday and Tuesday. They do not know which part of the treatment caused this reaction, but they are working to figure that out. However, Mason will not ever have the photo again.
Mason's doctor is optimistic that Mason will pull through this, but it's going to take a very long time because Mason's lungs were damaged. Also, Janet said that Mason's doctor is willing to go to bat for Mason in regards to asking for a second transplant. Apparently Kaiser and UCLA work together now on transplants. This is not a guarantee that they will do one, and Mason isn't even close to being ready for one yet. However, it's an option!! Janet will call me again tomorrow with an update, unless something else happens today.
Original Post - Mason has been MIA for a couple days, so I called his mom again tonight to see how he is. He's not good. He is in Kaiser LA ICU again, intubated and sedated. His mom said the docs do not understand what happened. They said he wasn't in rejection. They also said they didn't think he was going to make it overnight (this was Thurs night). Today (Friday), Mason has shown some signs of improvement, but still has an incredibly long road to go. His entire family is in LA right now, and they are all really shook up. Please pray for Mason!! Or have good thoughts for him if you aren't the praying type!! He really needs them right now!! I will keep you updated when I get news!!
Saturday's Update - Mason's mom left a message while I was out. She said Mason needed 2L of blood very early this morning. They don't know why or where he was bleeding. His vitals are not great, but better than when he went into the hospital. They tried to increase the ventilator, but his lungs didn't tolerate it at all, so they had to put it back on a lower setting. So basically he is about the same as yesterday.As for why this all happened....no one knows yet. They do not know if this was a reaction from the photothesis procedure he had on Mon and Tues (to combat the chronic rejection), or if something already was going on before he had it done. They keep doing tests on him to figure this all out. They aren't sure why he was bleeding either, and they were supposed to see if had stopped around 9pm EST. I did call his mom back when I got home, and left a message telling her how much we all are praying for Mason, and we love him and are hoping he pulls through this! She is going to call me back either tonight or tomorrow morning.
Here is his story:
My journey began late in 2005. I was 17, working and going to school full time. I started to notice shortness of breath in the mornings. I thought I was just getting out of shape and didn’t worry too much about it. After a few weeks one morning I was pushing out quads, (I worked at a off-road shop) and became very short of breath and passed out. I was rushed to the ER. They told me I had pneumonia and sent me home on antibiotics. I took about a week off work and rested but I didn’t really feel any better. I went to a few different doctors, but they didn’t know what to do or what I had. One thought it was asthma and the others weren’t sure. One doctor scheduled an echo and x-ray. But I couldn’t wait any longer. So I went to a hospital in CA. It took about a week of tests and evaluations to get a diagnosis of PPH. I was sent to a PH specialist in Los Angeles for a right heart cath. The doctors discovered that my PH was severe and that I needed start on Flolan immediately. I was told that it usually works well and quickly. I didn’t mind mixing or any of the stuff that goes with Flolan. The problem was I had PVOD (pulmonary veno occulsive disease). PVOD is hard to treat. It clogs the veins leading from your lungs to your heart, and causes your pulmonary arterial pressure to rise just like any form of PH. The Flolan lowered my PAP but made my PVOD worse. By February I was bed-bound. If I had to walk more than 100 feet I had to use a wheelchair. I was listed for transplant a few months later and waited 11 months for my transplant. After the transplant I had a great recovery and was a full time walker in the first month. I had 5 months of greatness, no problems at all. Then I got hit with rejection, fungal infection, flu and pneumonia. That has slowed me down a bit and there are still some bumps. But I’m still glad I got it. If I get a few more quality years, I’ll be happy.
Sunday's Update - Mason is still about the same, no more blood tranfusions, which is a good thing. Still very sedated, can't really get him off the ventilator yet, his lungs don't like it. They have him on puffs of air right now, b/c his lungs won't take anything more. They started him on a heavy dose of steroids today since they are not sure if his lungs have an inflammation, or if this is still chronic rejection. His doctor will be in tomorrow morning, and Mason's mom has a lot of questions, so she'll try to call me earlier if she can.
I have never wondered about my name because I am who I am always seeking to know things, always wanting to find the answer to many questions. I am the kind of person who always tries find different ways of doing things. I am always seeking to know what more the Lord has for me. Or should I say what more can I do for Him.
I am never without the things that I need: food, clothing, shelter, medicines, a car, gas for the car, rides, friends and money even if it is a small amount. The extra stuff is like great riches to me, which I really do not need them, I lack nothing. God is my provider of all things I need.
Isaiah 41:10, says - Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand. Is a scripture that I live by, it goes hand in hand with the fact I lack nothing He will always provide.
Today is Sunday a Church day, but since I am still on restriction until Tuesday, my home is church, God is always here. I miss my church family very much but my health is more important right now. God knows my heart. I have spent much of my day in prayer - that are so many in need of our prayers, if I can't go to church I will wait upon the Lord.
November 15, 2008
We are told in scripture that we are to pray for one another - how many do you know that are in need of prayer? We are to pray without ceasing - please pray for the people you know who are in need God hears our prayers.
Many of our friends are in need of prayer, their health diminishing.
This disease pulmonary hypertension (PH) as well as many others without a cure, special medicines or a touch from the Masters' Hand just plain pass away.
Lord we are in dire need of you touching a young man (Mason) laying in ICU dying, he needs a touch from you. Lord please breathe the breath of life into him right now and make him well again. There is a young woman (Shirley) who just had a double lung and heart transplant that is in need of your help. She is recovering but still needs your touch. Lord thank you for hearing our prayers.
There are children at birth, put on IV's for life because of this disease. It is bad enough that the adults have to deal with this, but the children, Lord please touch the little children, help them to breath easier, restore their little lives so they don't have to live with medicines and/or oxygen 24/7. Thank you for touching their little lives.
This particular disease takes lives of children and adults, it has no respect for any one's life. Please help us pray that a cure or better treatments can come our way so that people can live and not die. In one week alone PH has taken 10 lives that we personally know.
Please go to our web site if you haven't already and learn more about this disease. http://www.phassociation.org/. Thank you for praying with me and others, some day there will be a cure. Thank you Lord for all that you are doing in the lives of our sick.
November 14, 2008
This scripture is true for me, I have been pronounced dead 4x's, I've been brought back. Oct '07 I probably should have died yet I am still here. I believe God is using me to tells others my story. He has delivered me from death so I can live for Him.
I have left you hanging since Tuesday and I am sorry - I awoke on Wednesday via the phone ringing - I picked it up but it kept ringing then it dawned on me I have to press talk, funny how these phones work. Anyway, I told the person I did not feel well and could not come in. Not a problem - went back to bed - I was in the bathroom more than not. Yesterday I mostly slept. I am up today with a headache but I am up. My girlfriend's beep on the computer woke me to tell me I left her hanging - so here is the rest of the story from Tuesday.
I like my new heart doctor, Dr K he is very thorough and he works hand in hand with Dr P my PH doc. He asked questions and so did I.
Apparently I have a few things going on not in my favor. PFO's (Patent Foreman Ovule) or hole in the heart in adults can only be fixed or repaired if it is measured to be beyond a certain cm size and/or I had to have a documented stroke.
1. The Echo that was done in March showed the hole to be open 24/7 small at rest and very large when moving, they didn't measure it in cm's. So now Dr K has to actually measure it to see if I qualify for the repair. He is also contacting my Neurologist who dx'd the TIA's (mini strokes) to see if the tests they did, actually has it written down what caused the TIA's if it was the PFO that could qualify me for the repair.
2. The only thing that came back abnormal on the blood tests was the Lupus anticoagulant - it was extremely high, suggesting blood clots daily - will be on Warfarin for life (a blood thinner) - based on 4 different positive readings. The 10 vials taken last week Thursday showed I was normal in vitamins, minerals, anemia and whatever else was tested.
3. Dr K put me in class VI for PH per symptoms. Class IV is the worse, which means severe - one can't do much without having problems. Now Dr K has to go in and find out: is it my heart that is causing the problem or my lungs. He said he agrees I don't have asthma - but believes something is wrong when my 02 goes up when I do anything when it should go down. Just doing a few simple things in his office I just about passed out 2 times. Okay so I am backwards.
4. My TEE (trasesophageal echocardiogram) is scheduled for Dec. 5th, after the test Dr K will give me the results then schedule an exercise heart catherization to see what is going on. He thinks I have exercise induced PH (pulmonary hypertension) but can't prove it based on written reports so he will look himself.
5. No meds can be started for PH until they know what they are dealing with - heart disease runs in my family. So that is why the concern. He did say that I did have PE's in Oct '07 which is what triggered all this. And so I wait. Thanks for reading and the support.
November 11, 2008
As the Lord remembers us we should pay tribute to all who have served in the armies and wars in years past. Those who gave their lives for us on the battle fields we say thanks. Young and old they should always be remembered - we should to grateful for the ways they provided protection for us. Thank you for giving your lives for us. Thank you for serving our country. For the many who came back - injured they need our prayers for healing, comfort and safety from the traumatic battle you now face, Lord be with them.
For all those for are currently serving we shall lift them up in prayer so that the battle can be won. As Aaron and Hur lifted up Moses arms so they too could win the fight, we shall hold up our troops in prayer. Let us gather together in one accord and pray with our Nation.
November 10, 2008
I have been praying about different things I could do on my blog site and it came to me to start each one with a scripture of the day.
Today is from Job 37:5-6 - "God’s voice thunders in marvelous ways; he does great things beyond our understanding. He says to the snow, ‘Fall on the earth,’ and to the rain shower, ‘Be a mighty downpour.’”Did you ever wonder about how all things are made? Where they came from? So many things are beyond my understanding. As for diseases in this world - too many to count - yet we still get them - some of us pass away from them - some people lose the ability to speak, see, walk, yet they keep going. You are probably wondering why I am writing this - it is simple I am asking questions to God as to why!
He sent His only begotten Son to die on the Cross so that we may live, He took the beating so we wouldn't have to, He bore our sins and carried our diseases so we can live. He did all these awesome things for us - and what did we do to deserve them - nothing!
So as I write this today I am pondering "why"! I am ever so grateful for what the Lord has done for me that I need not ask why, I need to be thankful that today is another day I can live.
No where in the Bible does it say we will be without sickness or disease, no one is without, except Jesus. What it does say in scripture that when we get to heaven He shall "wipe away every tear from their eyes; and there shall no longer be any death; there shall no longer be any mourning, or crying, or pain; the first things have passed away." Rev. 21:4.
This disease PH and many others without a cure or a healing people simple pass away. Yes, we have medications to take which I believe is provided for us as a way of Jesus helping us to get to another day. He provides the Drs., Nurses, treatments for our own good - we need to keep taking a day at a time, one step in front of the other. Like the phrase in Footsteps in the sand, we only see one set of footsteps because Jesus is caring us, our burdens can be light if we give them to Him.
If we can't physically walk - He provides wheelchairs, scooters, walkers, crutches and canes. If we can't speak - He provides typewriters, computers, letters, pens and paper. If we can't see - He provides seeing eye dogs, people to help, sign language. If we have trouble breathing - He provides air in the form of oxygen. So if only for only a day, today let us be thankful for what we have and not what we don't.
We have one life to live so why not live it thankfully?
November 08, 2008
November 07, 2008
November 06, 2008
November 05, 2008
I did my Bible reading said my prayers - and felt good so I went food shopping - came home put it away and that was it. I was done, I took another 2 hr nap and when I awoke I just didn't have any energy.
Tomorrow is my appt. with my PH specialist - have to have a pulmonary function test, 6 minute walk, then talk to the Dr. about what has been going on or should I say not going on. Ever since I got sick this last time around I am completely zapped of all energy.
I have my last appt. with Craig my physical therapist at 9am tomorrow for my knee, I would love to cancel it but I have done so 2 times in the last 2 weeks so I have to go. My knee is doing quiet will all things considered. I believe that the 2nd surgery was a blessing from God because my knee has never bent past 90 degrees for 15 yrs. it now bends 103 degrees enough to walk up and down stairs. I can walk down but going up due to my PH it is extremely hard - I have no air or breath to do it. I do take the stairs down as often as I can to keep my knee moving - I rely on the elevator to get back up.
That is it for now - I'll be back tomorrow after 6pm because of my 4 pm appt. Thanks for reading.
November 04, 2008
I am up, ready to go but want to go back to sleep. Eight hours of sleep for me is just not enough - especially when you don't feel good.
I am off to see my ENT specialist to have my stroboscope done so I can give it to my Neurologist before surgery. I'll be back -
I will sleep in tomorrow and finish writing - I have already called church to tell them I would not be coming in to volunteer tomorrow and my pastor understood. He said, "my health is more important right now, but please know how much you are needed." That makes one feel good when they say that. Thanks pastor!
November 03, 2008
November 02, 2008
Daylight savings time really mess's me up for about two weeks, I don't know about anyone else but me it is the pits, why can't time just stay put? Spring ahead and fall behind just is dumb to me.
Tomorrow I have to get up early the van will pick me up at 9am for my Drs. appt. I need to have my blood work re-checked to see if my CK-MB is still elevated, I pray it isn't I don't want any more antibiotics. They make me sicker than I already am.
November 01, 2008
As I am typing this I keep wishing I didn't have to take so many meds and I am not on any for PH yet. I am on 12 different meds now - and wish I didn't need any of them. Sometimes I wonder if the meds don't make us sicker than we already are. I guess I will know when I get to heaven if it will matter then.
I feel like I am on a roller coaster ride and just can't get off - and I don't ride them. Maybe some day we all will be well again. That is my prayer.
October 31, 2008
Last week I thought I had the flu, with a fever of 101.8, sickness every time I turned over. By Sunday evening I started to get extreme pain in my "heart" area. Went to my primary care clinic and they ran tests which sent me to the hospital for more tests. My regular Dr. called me and told me to go to the ER to have my heart checked out - she didn't like my test results.
At the ER - their tests showed I had a sinus infection as well as an inflamed heart muscle called 'Myocarditis". Not a good thing I am learning. I am on antibiotics for the infections will go back to my primary Dr on Monday. More tests will be done to see if I need more antibiotics.
On Thursday, Nov 6th I have to have an PFT, 6mw as well as seeing my PH doctor. Nov. 11th I will see a new Cardio Surgeon, to let me know if he can fix the hole in my heart or what else he can do.
That's it for now - I am still not doing well. I write when I can.
October 26, 2008
My turning point of my life was on Oct 2nd, 07', I saw my primary Dr. she ordered a host of tests - ekg's, echo's, ct scans and blood work. On Oct 5th I got the call - I had to have a heart catherization - I had blood clots in both lungs, enlarged pulmonary artery, fluid on the heart and the list went on.
Was hospitalized Oct 15th, 07' for 6 days. Was put on blood thinners and 8 other medications to deal with all that was going on. My life became a stand still. March 08', I saw my first pulmonary hypertension Dr. and learned I also have a large hole in my heart - a birth defect. Went through more tests. It is now one year later and I still have the shortness of breath, chest pains, rapid heart rate and can not do the easist of tasks like going for long walks, cleaning my house, going up stairs, exercising, making my bed is a challenge so I don't do it, who cares (I live alone).
I have now learned that if I have the hole in my heart plugged or repaired my pulmonary hypertension could possibly resolve itself. I am not on meds for the PH yet- I see my PH Dr on Nov 6th at which time he will decide what route to go.
Prior to all this happening I worked 60 hrs a week, owned a floral business in my home, exercised on machines daily plus walking 3 miles a day. I no longer have my business - it's doors closed in Dec. I am praying a miracle comes our way - I am looking forward to the day I can go back to work and exercise again.
As we renew our strength in the Lord, we will soar on wings of eagles.